Time to Quit?
Hi all, I have a 16 year old son who has been on the diet for 9 months. We cannot see any improvements that we can contribute to the diet. He is also on medication and the meds seem to have helped tremendously. We know it's the meds and not the diet because the times that he has been off of the meds we have seen such a dramatic decline. He has been a trooper with the diet and I know for a fact that for the past 9 months he has been 100% gfcf -- he is homeschooled and goes no where without me. Anyway, we decided that we are going to give up the cause. We're glad this has been successful for others but it just doesn't seem to be our answer. Last night, we gave him some fried chicken from the grocery store and he loved it (of course). We didn't see any changes in him. We are going to continue easing him back onto "regular" food and see what happens. We want to thank everyone who has helped with their words of encouragement and their delicious recipes. Hopefully, this will be the answer for many of your children, We all know this world of autism. What works for one doesn't necessarily work for others. Take care and good luck!
In a message dated 3/11/01 7:52:28 AM Eastern Standard Time, Misura2@... writes: We want to thank everyone who has helped with their words of encouragement and their delicious recipes. Hopefully, this will be the answer for many of your children, We all know this world of autism. What works for one doesn't necessarily work for others. It is hard to estimate, at this point, how many autistic spectrum children will (or could be) helped by dietary intervention. Even if you guess a very generous 70%, that still means that 30% won't be. And that number may be off. We just don't know. The older the kid the longer the trial should be, just to be sure. Nine months is a good trial, especially if it's been strictly monitored. It is always disappointing to have to give up something that once provided some hope, but we all have that "done that, didn't help" list. For your son, diet obviously needs to be on the list. Best of luck to you both, in finding other interventions that help more than diet did. Lisa Lewis
In a message dated 3/11/01 4:13:56 PM Eastern Standard Time, debbiejusi@... writes: Just wish there were more rice free recipes, <sheepish grin order?????? I have been working on a second book, and hope to have it done in a few months. Sometimes I wonder if I should bother though--there are so many resources for recipes now that did not exist when I wrote the first volume. RE: rice-free...it is so hard to come up with totally rice free as you know. Fortunately rice sensitivity seems to be pretty rare, but when you have to deal with it -- what a bear! I will try to come up with more and thank you for the suggestion. If anyone has an original recipe that they would like to see included in the book (with attribution of course) they should send it to me privately at lslewisphd@.... Thanks for all the kind words and welcomes. Now that the connection has been made, I'll go back to my usual signature. LL
This is alot like any other allergy though, Renee. For example children who are allergic to penicillins are more LIKELY to be reactive to cephlasporins as well because they also are made from a refined mould, but it is not a given that they will be. Only something like 10% are cross-reactive. Other children with corn allergies are more likely to be reactive to sorghum because of the similiarities of the two proteins. Unfortunately, when kids are already sensitized, they are even more LIKELY to fall into that 10%. Blessings, BL ****************************** * v'col netivotcha shalom * ******************************
I made some crepes with 1/2 potato starch and 1/2 pink bean flour last week. I was so suprised that even the batter didn't taste beany. They were really good. I had some with jam and some with a thick black bean soup/potato topping. I wasn't able to bake anything this weekend when this came next in my rotation but I plan to try something tomorrow when potatoes and some legumes are the complex carbs. I will report on my success or lack thereof. Joanne
--- In GFCFrecipes@y..., Lisas156@A... wrote: ...RE: rice-free...it is so hard to come up with totally rice free as you know. I used to think so, too, but I'm meeting more and more gfcf-ers for whom rice is an issue. I wonder if rice is considered a rare problem b/c it's the last place people think to check for food problems due to it's presumed safety? I found in celiac info that rice (along with milk) often must be excluded during the first 6 to 12 months that a person with CD is on a glutenfree diet. For us, it scored high on the ELISA, removal caused a withdrawal period, and infringements cause gluten-like reactions. Linda
* Exported from MasterCook * Potato Starch Bean Flour Crepes Recipe By :Joanne Spotten Serving Size : 6 Preparation Time :0:00 Categories : Amount Measure Ingredient -- Preparation Method
I didn't see (and can't find) the original post re rice allergy -- but we too are rice free. For my son (allergies not on the GFCF for autism) he developed an allergy to rice after we were eating rice everything as substitutes for wheat etc. Its funny, what seemed hard before (no grains except rice) would seem like such a treat now (my son is dying to eat rice cakes like he used too!). The real pain about loosing the rice is it really made there be virtually no prepackaged snack/bread type of food -- its meant much more work for me baking etc. We do bake with garfava flour, quinoa, and amaranth. We have a few things we like -- a lot of failures on trying to make any type of sandwich bread they like. Snacks now include fruits, nuts, dried fruit, bliss bars (nut, dried fruit and puffed amaranth bars made by govinda foods -- I think they have a web site and miss robens carries), "fruit crunchies" (actually called Just Fruits they are crunchy dried fruits in tub at our health food store). Plus some muffins, cookies, waffles, etc that I bake. Good luck -- ask me any questions if I can help -- I didn't see the original post but assuming from the other response that you recently discovered a rice allergy ontop of GFCF. Kelly